Tuesday, June 10, 2014

Day 1 - Fundraising

Day 1 of fundraising for IVF netted us a total of a lot of sweet, wonderfully supportive comments and love and a whole five dollars.

Truthfully, $5 is nothing to scoff at. That's $5 someone took out of their pocket and handed over to us because try want us to succeed. It is the most concrete way they can show us support and that means a lot to me. I am truthfully grateful for any donation. The person who donated it chose to remain anonymous to the world, although we know who it is from because they sent us a message, but I am sad that they want to remain anonymous because I would love to be able to thank them publicly! 

The best thing that has come out of my sharing my blog, so far, is that a friend from childhood shared her story with me and said she feels less alone in knowing my story. That's pretty amazing and wonderful and although it sucks that she has gone through hell alone, I'm happy that she knows there is someone else out there going through it too. I don't have any friends IRL, they've all lapped me and have moved on to find friends with kids or spend time with one another, so it's nice to know someone IRL who understands that. 

I am, however, disappointed with myself because I feel like a failure for only raising $5. Was I not self deprecating enough? Should I have spammed Facebook? Emailed my blog and campaign to my entire address book? I keep telling myself that I am not a failure, that it's has only been one day since I began my fundraiser but still, I can't help feel like I fail at everything right now. And I'm scared. Scared that we are losing time by my going on BCPs that might be all for naught if we can't raise the money for IVF. I'm scared that we will fail before we even get the chance to try. 


Monday, June 9, 2014

Straight to IVF

Well, we have decided to forgo IUI#4 the repeat, after all. My insurance company is being weird and didn't give approval for the repeat IUI. Instead, my RE wants me to start BCPs in preparation for stimming for IVF in August.

I am kinda trippin out. They called in the BCPs and said I will get a call from my new coordinator (sad face because I love my current nurse) for IVF, next week and we will find out if we need to redo any blood tests or anything, at that time. Obviously, I need to get poppin' on this fundraising thing. Sooooo, I am going to go with Cici and Packer's recommendations and call my new blog, It Takes a Village: The Quest for Baby L and share it on facebook tonight or tomorrow.

For fundraising I am going to use DepoitAGift.com. They are reputable and their rates are reasonable and they have the fastest cash out time. I considered PayPal and GiveForward.com but PayPal deposits into our account on a schedule and doesn't allow for a way to keep a running total of how much have been raised and GiveForward's rates are a little higher.

I am a tad bit disappointed that we can't do IUI#4, the repeat, but overall I will be happy if we can move on to IVF.

Friday, June 6, 2014

Arg! I've used up all my creativity!

Well, I have now confessed my deepest secret to: My parents, my sisters and my Aunt. Everyone who needs to know now knows. One sister responded via text and the other texted and called. Both are being very supportive.

My newest dilemma (because I always seem to have one) is trying to find a good name for my new, public blog. I used up all my creativity in naming this one and I LOVE the name, but obviously cannot use it twice! Everything I have come up with just sounds too common or not very "us."

I've thought of:

It Takes a Village: Our Quest for IVF

Dreaming of a Family

One Day Closer, Our Infertile Journey

Infertility Wasn't Part of The Plan

The Story of Us: Striving for IVF


But I just don't really LOVE any of them! I just can't think of anything clever.

Tuesday, June 3, 2014

Nerves

I've kinda stalled on the trying to fund our IVF front, for one reason: I am so nervous about telling my sisters!
My mom was so supportive and really kind about the whole thing but my sisters? I am just not sure how they will respond. My biggest concern with them is that they will be upset and hurt that I didn't tell them sooner.

My mom suggested that I just email them both, so no one is getting more or less info than the other, in case I accidentally omit something during conversation. I know that one of my sisters hates getting news via email, but I just couldn't get up the nerve to call her this weekend. I picked up the phone three or four times and just couldn't do it.

DH also says I should just email them to avoid the drama and three hour long conversations that would ensue but I haven't been able to pull the trigger! I've been at this alone for so long, it feels weird to think of actually being open about it.

I am oddly calm about, not only having our cycle cancelled, but about moving onto IVF in general. I think it's definitely a case of the more you know the less you worry. If I didn't know of the experience of the gals on TB and IDOB, I think I would definitely be more scared but it feels like the right thing to do. I am actually more comfortable with the idea of IVF than I was with IUIs. I never thought I would feel this way.

Perhaps it's my mind recognizing what my body already knows; IVF is our only positive option. It probably has been the whole time and deep down, I've always known it.

Wednesday, May 28, 2014

Plans for Funding IVF

As I have mentioned, my mom suggested trying to do some online funding from IVF. Honestly, I feel pretty uncomfortable asking people for money, but I am trying to swallow my pride and find the least tacky way to go about asking or we will never be able to do this. Although my parents have offered to help, it's a lot of freaking money we are asking for, so I'd like to try some other avenues before I just allow them to take the full brunt of the financial responsibility. We are also looking at financing options and the compassionate care meds program.

So, my plan is this: create a new blog about our journey and within that blog, as for money. I'll "come out" on facebook and post the link to the blog. I feel like this is way less tacky than just posting a link to our funding site. Below is what I have for the blog so far and I would appreciate it if anyone has any insight, if they could leave a comment. I am trying to not give too many specifics, and am also trying to address a lot of the things I know my very religious Aunts will bring up. Also, I have mentioned on here that DH does not want to adopt but I really don't want to have to explain his family situation to everyone, so we just opted with our answer below in anticipation of the question. I also I plan to link a page with our actual treatment history for those who are interested.

Here it is:

S and I have been blessed in many ways. We have 23 amazing animals (dogs, cats, horses, goats and chickens) and live in the beautiful foothills of the Sierra Nevada’s in Northern California. We have our health, we are happy and life is good. There is, however, something missing. There has been for quite some time, and I am sure many of you have noticed: we have no children. There are no little voices, echoing in our hallways, no toddlers trying to ride any of the dogs and when we watch Disney movies and I dance around the kitchen, singing along, it is very much alone (have you seen S dance?).

So, why don’t we have kids?
Well, we want children, very much. Unfortunately, due to my endometriosis and Poly Cystic Ovary Syndrome, we haven’t been able to realize that dream.  We have been working with a Reproductive Endocrinologist and have been undergoing fertility treatments, but nothing we have tried so far has worked. We have now come to the point in our journey of trying to create a tiny human that IVF is our only option. (For those of you who like details, click here, to read about our journey so far)

What is IVF?
The very short, non-scientific version: IVF or in vitro fertilization is a process in which eggs are retrieved from the mother and fertilized by the father’s sperm in one of two ways, using traditional IVF: putting the sperm and egg together and letting the sperm do their thing, or ICSI: the doctors choose the best sperm and inject it into the egg. The egg is then left to incubate and become an embryo. After a few days the embryo grows and is placed back into the woman’s uterus to grow and be nourished and come back out, nine months later as an adorable tiny human.

So, why don’t you do IVF?
Sadly, IVF is very expensive and is not covered by our insurance. Until recently, we have been fortunate enough to have some insurance coverage for my infertility treatments, however, due to recent changes in the health care system, we will no longer even have the coverage that we once did.  While our policy says that it covers “50% of the diagnosis and treatment of infertility” there is a large list of exclusions including: medications for the treatment of infertility, artificial insemination and IVF. So basically, it doesn’t cover anything at all. While the little coverage it does offer is somewhat helpful for testing, it does not help people like me with blocked tubes and scar tissue build up from endometriosis.

What about the risk of multiples with IVF? What do you want, a litter?
Yes, there is an elevated risk of multiples with the use of fertility medications and IVF but there are ways to prevent multiples by only transferring one or two embryos (depending on the embryo quality).  There are a lot of dangers associated with carrying multiples and doctors do everything they can to prevent HOM (high order multiples). Most often, people who get pregnant with a “litter” do so because they go against doctor’s orders. For example, there is a very well known television family who went through fertility treatments (IUI or Intrauterine Insemination or Artificial Insemination) who responded too well to the medications. She had far too many mature follicles (eggs) and her doctor cancelled that treatment cycle. She and her husband were told to abstain or use protection to avoid HOM. They chose to ignore doctors orders and voila: a litter of children.  In the case of Octomom, she went to a very irresponsible doctor that choose to implant far too many embryos. Thankfully, we go to a reputable clinic that works in conjunction with UC Davis. Our doctors are ethical, well educated and well practiced.

What happens if you have lots of embryos? Would you just throw the ones you don’t use away, or leave them in deep freeze forever?
Absolutely not. We believe that life is created the second sperm meets egg. Just throwing away or freezing our embryos forever would be like throwing away a tiny human or freezing one forever! There are a few options for us: Any extra eggs retrieved, that we wouldn’t use during this cycle to achieve pregnancy, can be frozen for us to use to be able to give our potential child a sibling, later. The cost of a frozen embryo transfer is much less that the full cost of another cycle of IVF. Also, if we were to have more embryos than we wanted to use for ourselves, we could donate the embryos to another couple struggling with having a child that has egg quality issues. 

Isn’t there something else you can do?
There is a surgery, called a laporoscopy, that helps with the removal of that scar tissue. I have had this surgery twice and while it has helped alleviate a lot of discomfort, the doctors cannot remove the tissue surrounding my ovaries or blocking my tubs without the risk of damaging them and creating further problems with my fertility. Hence my doctor’s recommendation that we do IVF.

Why don’t you just adopt?
That’s a good question and some day we might, but for now, we would like to try and have our own biological child. Plus, adoption is very expensive (more so than IVF) and the wait time to adopt a baby in the US is four to five years.

I think you two will be excellent parents. What can I do to help?
Well, we are asking people to help fund our IVF procedure by donating here (HERE will be linked to our funding campaign).  Any amount will help.  At our clinic, we have been offered a discount and one cycle of retrieval and embryo transfer costs $9,500 (an additional cost for ICSI is $1,500) plus the cost of medications, which is an additional $6,000-8,000. We are trying to fundraise the full amount of $17,500. While we have the means to care for a child, we don’t have such a large amount of money at our disposal and financing options for treatment have high interest rates. We are applying for grants and discount medication programs, but there is no guarantee we will receive them. 

I would like to help, but don’t feel comfortable donating through a website.
Please feel free to email us at (I'll insert my email address) and I would be happy to send you our address and you can mail us a check or money.

I’m sorry you’re going through this. I don’t know what to say.

Battling infertility is hard and people often don’t know how to comfort their friends and loved ones who are going through this difficult journey. Here is a great resource to help you know what to say, and what not to say, to people struggling with infertility: http://www.resolve.org/support-and-services/for-family--friends/infertility-etiquette.html

Tuesday, May 27, 2014

I need a vacation day from my vacation day!

Well, we are cancelled. I had my monitoring appointment yesterday morning and the only thing my RE saw (besides a "fluffy" 11.9mm lining) was a 20x3 follie on my left (blocked) side that he said looked like it was deflating. I was using opks and hadn't gotten a positive so he doesn't think I O'd, although I had a ton of pain on the drive down to the RE's office yesterday morning. He kept checking my uterus and when I asked why, he said that he was looking for a yolk sac because it was so strange that my follies just disappeared that there was a chance I was already pregnant with a late implanter from my last cycle, but there was nothing there. He suggested that I test when I got home just to be sure, which I did and of course it was negative. Damn him for even suggesting it. Or damn me for even asking!

While we are working on getting funding for IVF, he suggested that we retry for IUI#4 next cycle before my insurance changes, so we will probably do that. Just something to do in the mean time!

We worked in our gardens all weekend, so I got a pretty bad sunburn (even with sunscreen on) and when I got home yesterday, I decided I just wanted to sit and watch TV. Our businesses were closed for the holidays anyway so it seemed like the right thing to do! As DH and I were just hanging out, we heard a plane. We live on the edge of the Tahoe National Forrest with no airports near us, so when a plane flies overhead in the spring and summer there is only one reason: Fire.

I checked for fire updates on my phone and DH went out to look for smoke. There was a fire near a campground close to our house on Friday so we were already a little stressed from that. As soon as I read the fire updates I ran outside. There was a fire near the creek a few acres from our property! When I got outside I couldn't see our neighbor's house (roughly six acres away) because there was so much smoke blowing over it. DH jumped on his quad to go wake his mom up (she's a day sleeper because she works nights) and I went in the house to get everything ready to go.

We live on a very small, winding, one lane road. It winds up and down the canyons and over a one lane bridge over the creek where the fire was, so we decided we would be evacuating out the back way: a small dirt road that runs through the mountains into the back side of town, 11 miles away. When they issue evacuations here, they give you five minutes to get your stuff and go, so I had to find all the cats, pack a suitcase, get all the pictures together and ready the horse trailer in case they told us we had to go.

DH took off on his quad to go find the fire. There was a spotter plan flying above but no firefighters on scene so he and one of our neighbors wanted to see what they could do to stop the fire from spreading. Mind you, we live in very dense forest and it was a windy day, so while we could see the smoke coming out of the canyon, it was hard to see exactly where the fire was. DH went down the 4-wheeler trails, past our neighbors house and when he came around a corner, he almost drove straight into the fire! He said that it was a wall of flames in dense manzinita and brush. Thankfully, no trees had caught yet but it was pretty bad. Just as he was turning around to try another way around the fire, firefighters showed up and a plane dropped retardant, practically on top of all of their heads!

The firefighters got the fire completely out after about an hour. We, along with all of our neighbors, unpacked our most important belongings and breathed a sigh of relief. Due to the fact that our house is on the crest of the hill leading down to the canyon, most of our neighbors, with their packed up cars, had pulled up in front of our house to watch the firefighters do their work, hoping and praying that they would get it out.

It. was. terrifying. I have decided that if this is what our summer is going to be like, our birth certificates and marriage license as well as the deeds to our property and insurance policies are staying in the glove compartment of our car. I plan to spend the afternoon getting everything that isn't replaceable in one place, so we can grab everything quickly if we get evacuated.

Oh and the cause of the fire? A new neighbor had a burn pile (on a non burn day) that he hadn't completely extinguished before leaving his home. When he returned, he found that it had spread and called 911. Dumbass. Oh, and did I mention that he doesn't have his well in yet, so he had no water?

I didn't get a chance to take a picture until after it was mostly extinguished:

Thursday, May 22, 2014

IVF Fundraising

After "coming out" to my mom, she made the suggestion that I create a blog and account on a fundraising site so I can ask close friends and family to help us out with the costs (she is certain people will want to help). Yesterday, I spent most of the day (when I should have been working) writing up an "about us" and researching fundraising sites. At first, I was sure that Give Forward would be the way to go, but their rates are very high. So instead I found, Donate a Gift, which looked like it had lower rates, until I went through the entire process of setting up the account. At the very end, I realized they have extra fees that they tack on to each donation with makes their fees just as much as Give Forward! Grrrrr.

Have any of you used any fundraising sites that have decent rates?

I know I should probably do all this after we complete IUI#4 but I don't have a lot of confidence it will work and I need to get this show on the road. Either my Aunts and Uncles will come out in force and we will have the money for IVF in no time, or no one will and we'll be fundraising for a looooonnnnng time. If it's the latter, I want to get started ASAP.